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AAAF JAK Inhibitors Research Update June 2016
AAAF study with Sinclair Dermatology is nearing completion. This study is a double- blind placebo controlled, prospective clinical trial comparing 1% Ruxolitinib ointment, 2% Tofacitinib ointment, 0.05% betamethasone diproprionate (an ultra-potent topical corticosteroid) ointment-to-ointment base. A total of four ointments, including a base ointment, was provided to participants in 1 gram unlabelled tubes (Tube A,B,C & D) to apply twice daily for 12 weeks. Applications were on four different areas: left and right eyebrows as well as left and right parietal scalp (above the ears). Our preliminary results suggest promising outcomes for the use of JAK inhibitors in regrowing hair. A total of sixteen patients were successfully recruited into the trial and put on medication. 30% of patients reported spontaneous hair regrowth in both treatment areas and scalp. One patient reported complete regrowth of scalp hair and eyebrows. Regrowth is maintained 12 weeks after medication have completed. Areas treated with 2% Tofacitinib have demonstrated marginally better regrowth in comparison to 1% Ruxolitinib. In addition, 0.05% Betamethasone diproprionate (corticosteroid) have shown to result in hair regrowth in some of these patients. We are currently in the final stages of the study and in the process of analysing results. .

Australia Alopecia Areata Foundation Inc.

Alopecia Areata is believed to be an immunological disease under genetic control, which disrupts the normal biology of the hair follicle. For more than 30 years, leading Dermatologists around the world have been studying hair growth patterns, genetic and immune theories, striving for a cure and an acceptable treatment for Alopecia Areata.

Today there is no cure! Today the treatments vary! Today we have hope!

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Promote positive image and respect for Alopecia Areata sufferers.
Assist individuals and families with coping strategies to live with Alopecia Areata.
Provide strategies against bullying / name calling.
Provide opportunities for Alopecia Areata sufferers to have a voice and participate in their communities
Increase awareness into our community about all forms of Alopecia Areata.
Attend schools to inform parents and school communities on the disease.
Raise funds into medical and psychological research.

JuliaWilsonJulia: Having Alopecia doesn’t have to be just bearable or just manageable. It will be part of you, but you can move on and it will not define you!
CatherineGrantCatherine - 21: Whether I have hair or not I am always thankful for what I have, rather on concentrating on what I don't have.
HeidiAHeidi: Alopecia isn’t something we should feel embarrassed or ashamed about.
stefStef: 16, telling her story through a poem.
camCam O'Rourke: 12, I first got AA in early 2010. It was a massive shock because it started off as just one tiny patch, and in about four weeks, it had all gone, apart from a couple of tiny patches.
MichelleMichelle: hair loss is something to be embraced. I'm ready for openness; I'm ready for people to be challenged; and I'm ready for bald women to feel empowered. I don't want to spend my life merely surviving as a bald woman. I'd much prefer to live.
SarahPSarah P: I’ve had ups and downs, I’ve been self conscious and I’ve been brave. I don’t know where I will be this time next year, or what my head will look like. But it’s an adventure, and its all part of my story.
JamesMillerJames Miller: Imagine you are 10 years old, and one morning you wake up to find you have a bald patch at the back of your head the size of a golf ball,this is what happened to me.
StellaStella 10 …..I’m VERY happy now in my school and I have a great family and friends and I’m happy to live a very bald and happy life!!!!!
Alex_WebAlex: Alison tells her story on son Alex ……We have a resilient, positive, strong willed young man. He may not have hair but he is healthy, wealthy and wise otherwise in his life – That’s the greatest gift of all!

News

Thank so much to 16 year old Maddie, who has cut and donated her gorgeous long locks to help kids with alopecia have access to wigs. We couldn't do the work we do without the support of wonderful people like you! Thank you so much for your support. ...

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Australia Alopecia Areata Foundation Inc. added an event. ...

Remove GST On Wigs Demonstration

August 6, 2016, 11:00am - August 6, 2016, 1:00pm

Parliament House

The Australia Alopecia Areata Foundation has been lobbying the Australian Federal Government for five years seeking to amend unfair rulings which do not allow for medical exemptions to GST on wigs. On the 6th of August, AAAF will be holding a public demonstration on the steps of the Victorian Parliament House to gain awareness and attention of this injustice. Chel Campbell, President of the Australia Alopecia Areata Foundation Inc., will be cutting and shaving her hair to draw awareness to this cause. Her hair will also be donated to make wigs for children experiencing the condition. Volunteers with Alopecia will also be receiving body art paintings to their heads. The Australia Alopecia Areata Foundation (AAAF) is a charity which seeks to improve the lives of people living with alopecia areata and their families through support, raising awareness and funding research into this condition. Alopecia Areata is a medical condition which causes hair loss to the scalp and body. It is believed to affect up to 2% of the population and most commonly presents in early childhood. There is currently no cure or treatment. Though alopecia areata does little physical damage, it can have severe emotional and social impacts on the lives of those with the condition, in some cases sadly leading to depression, anxiety, and suicide. Many people with alopecia areata manage these severe psychological impacts of the condition by wearing wigs, on which they must pay GST. AAAF has been lobbying the Australian Federal Government for five years seeking to amend unfair rulings which do not allow for medical exemptions to GST on wigs. Despite the fact that those who experience hair loss through cancer treatment have options to access wigs GST-free, people with alopecia areata are not allowed this same consideration for our health care and quality of life. Following yet another disappointing rejection from the office of Mr Scott Morison, AAAF have launched a petition and social media campaign to gain awareness for this injustice. Our Victorian Branch has also elected to host this public awareness event. Come along on Saturday the 6th of August to show your support of this worthy cause. Event is open to all and welcomes all ages. If you would like to be involved or receive more information, please email: georgia@aaaf.org.au The petition for removing GST on wigs can be accessed here: www.change.org/p/the-hon-sussan-ley-remove-gst-from-medical-wigs

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A huge thank you to nine year old Charlotte, who has cut and donated her hair as well as running a wonderful fundraiser to help support people in need. We couldn't be prouder of the amazing young people in this community and we couldn't be more honored to receive your generous support. Thanks Charlotte.

"Back on the 13th of May we cut Charlottes long beautiful hair and donated to you. Thanks so much AAAF for her certificate and wrist band she was over the moon. Charlotte is 9 years old and raised a total of $1750. Half of this she has donated with her hair to help make wigs the other half she donated to a local family who has a member battling cancer at the moment. Here are some photos of the day. Thanks so much, we are so proud of Charlotte and that she chose you to donate to."
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Three cheers for Liz, who shaved her head to raise funds for the wonderful Leukemia Foundation's World's Greatest Shave, and donated the hair to be made into wigs for people with alopecia. Two amazing causes with one good deed! Thank you Liz! ...

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